🤔 Living with a Body That Doesn’t Follow the Rules

Living with multiple chronic conditions

Chiari, EDS, adrenal insufficiency, endometriosis, cluster headaches, and peri menopause to name a few can often feel like navigating an unpredictable maze 🌀.

The unpredictability of symptoms, the mental and emotional weight of managing them, and the constant need to be aware of what’s happening in my body is exhausting 💭.

I don’t always talk about the hard days, the days when I feel like I’m fighting against my own body 🤕, but they exist, much more than I care to admit at the moment, if I’m honest 🤐. Im entering a new cluster cycle.

The chaos in my body doesn’t always look the same from day to day, and there are times when it feels like I’m doing everything right and still being knocked down 💔.

I’ve learned that it’s okay to not have it all figured out, to rest 🌱, and to ask for help 🙋‍♀️. Strength doesn’t always look like powering through 💪; sometimes it’s about accepting what’s happening, allowing yourself space to breathe, and taking care of your mind 🧘‍♀️ and body 💆‍♀️ in whatever way you can.

Living with these conditions doesn’t define me, but it does shape how I navigate the world 🌍.

I’m still learning to live with the chaos and the unpredictability a decade on, finding my new normal as things change 🔄, and finding peace in the moments of stillness 🌸.

Right now, I’m also coming into a cluster headache cycle, which brings a lot of fear 😨. The pain itself is intense, yes… but it’s the fear of the unknown that makes it worse 😩. The fear of when the pain will peak, how long it will last ⏳, and how much more I can endure. It’s mentally draining in a way that’s hard to explain. Every time it begins, I have to remind myself to breathe 🌬 and take it moment by moment. That’s all I can do in any moment.

But that’s the reality of chronic illness – it’s unpredictable, it’s messy, and it’s hard. And yet, we keep going.

✌🏼💜💫 

I’ll post about cluster headaches (aka suicide headaches) soon.